Everyone can help

Volunteers without arthritis, lupus or myositis who are not on any treatment are extremely important to our research efforts.

Comparing blood samples from volunteers with and without arthritis or lupus leads to the identification of processes in the body that may be responsible for driving these conditions. This in turn can lead to development of new treatments to block these processes.

Check out ‘Health research: making the right decision for me’ – a short animation produced jointly by the Nuffield Council on Bioethics & Mosaic Films to learn more about participating in research!

If you know of anyone who would like to help such as friends, brothers, sisters (or any other young person!) please do let us know.
Please click to register your interest

Open for participation

Enthesitis related arthritis of teenagers

Why the immune system of ERA patients changes when arthritis starts in adolescence

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Stress and JIA

Why does stress lead to flares of arthritis?

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Immune Function in JDM

Investigating the immune system of young people that have JDM

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Metabolism and development of JSLE

Investigating metabolism, cardiovascular risk and development of Lupus

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Adolescence and inflammation

Why does the immune system change during adolescence?

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Enthesitis related arthritis

Understanding ERA in order to develop better treatment

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Biomarkers in JIA

Developing an MRI scanning score in enthesitis related arthritis

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Gut and Arthritis

Influence of the gut bacteria on JIA

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Cardiovascular impact of JDM

Investigating the impact on blood vessels of Juvenile Dermatomyositis

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Improving adolescent health care and outcomes

Investigating service quality and new technology

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Biobank of samples

Storage of biological samples such as blood that feed into lots of research projects

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New treatment for lupus

Belimumab treatment in childhood lupus

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Children’s Arthritis Prospective Study (CAPS)

Identify happens in the short and long-term future in JIA

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JIA Genetics Consortium UK

Working out what genes are important in JIA

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JSLE Cohort Study

Improve treatments and understand long-term outcomes

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JDM Cohort Study

Improve treatments and understand long-term outcomes

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CHARMS Study

Understanding why children respond or fail to respond to treatment for Juvenile Idiopathic Arthritis

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BSPAR Etanercept Cohort Study

Monitor treatments and understand short and long term outcomes in JIA taking Etanercept or Methotrexate

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BCRD Study

Monitor treatments and understand short and long term outcomes in JIA taking biologic treatments (but not Etanercept)

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Fundraising

Lauren presenting John with her fantastic fundraising efforts!

One of amazing Young People, Lauren from Cardiff, raised a total of £1,198 with the help of her school Ysgol Gyfun Plasmawr.

She spoke in school assemblies about her condition and how it affects her life as part of her fundraising and awareness raising.

She is a brave and fantastic member of Young People United and we really appreciate her support!

Thank you Lauren, and to her friends, family and school that helped too!

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