Dr Debajit's advice

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Who to ask for help? Advice from Dr Debajit Sen :

Young people with JIA, lupus, myositis or other conditions often need advice for a wide range of different reasons. It can  be difficult to know what  is urgent  and what isn’t. It can be confusing to know who the right person is to contact. Most rheumatology departments will have a specialist nurse or other healthcare professional who may act as a named contact for patients or carers.

If you have not been given a contact name, number to phone or email, ask your rheumatologist for these when you’re next in clinic. If you feel very unwell and no one is available within the hospital rheumatology department (e.g. it’s out of hours) then the best thing may be to contact your GP for advice, NHS 111 service or attend your local A&E department, ensuring you bring any copies of recent letters from the hospital and a list of all the medication you are taking.

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